Lyme Disease

The internist is worried It's Hep C. Remember, I was stuck with a dirty needle, during an altercation at work, and contracted Hep C. 4 weeks later I turned a brilliant shade of yellow and had considerable hid stomach pain. I tested positive for Hep C, but the internist decided not to treat. At 6 months I tested negative, and it was negative again at a year. I cleared teh virus myself. (it sometimes happens) The internist thinks, because I was never treated the Hep C might have been hiding. 

I really think they are wrong, because the headaches eally got worse today. They are sudden severe headaches, always in the same spot, that are gone in a few minutes. I have never had a migraine before, and I am really sorry for those that do, but I think that the headaches are more like a migraine than anything else I can think of. I will just suddenly have a severe deep stabbing pain behind my right eye. I have never felt pain like this with any headache before. I thought I had a really big headache with the flu, but at least I had a little warning. I mean it came on pretty fast, but nothing like this. This is, suddenly I am pain so severe its almost debilitating. Even though it's short lived, I think it's a migraine, which is a symptom of Lyme disease. 

I fully expect my Hep C testing to come back Negative, and the way this is progressing , I almost think my Lyme test will be positive even though I have been on an antibiotic for two weeks.

Anyway, in a year this will all be a memory, and I will be over it. At least that I am claiming.

The meds are helping. The joint pain is mild to moderate, and the nerve pain is better. The headaches still have a ways to go. I imaging I had 20 of them today. I had Dr. visits for Honey today, so no time for me, but I will call my Dr. tomorrow. I don't think I want any medication for them. They go away so fast, I wouldn't have time to take a pill. It doesn't matter. When my head doesn't hurt, it doesn't hurt. When it does it really really does. Who knows.

I am still taking the Doxy, so I will get better. Says me!

I am trying hard to stay positive, but it is hard. Both wrists, elbows, knees, and ankles are effected. I stopped taking the Mobic because it wasn't helping at all and am taking 800 mg of Ibuprofen 3 times a day, just to keep mobile. Getting up from sitting is the worst, because my knees hurt, but I can't use my wrists to assist with some of the weight. 

The Dr. put me back on the prednisone, which helps a lot, but makes me feel like I have ADHD. I am still able to do my chores, alto I haven't spent much time with my darling horses, and poor Stormy has some nasty fairy knots, mixed with mud and hay that badly need attention. I may have to do the unthinkable and take the scissors out with me this afternoon. I think if I would only shorten his long flowing mane, by a little bit he might not get so tangled all the time. It will make me sad, but might be for the best right now.

I go back to my Dr. tomorrow to get some more answers, and set up an appointment with a rheumatologist. Hopefully my Lyme test will be back and will be back and tell us it that was the catalyst that started the RA. I guess there is a gene, that causes your own immune system to start attacking healthy cells suddenly, but there are medications to suppress the immune system and can put RA into remission. I pray that they will work for me.

This is my dream farm. Honey hates it here because my working out on the farm and with the horses, takes time away from attending to him. (Duh, that's the point.) It's the only time I feel like a whole person.  His dream for us would be, for us to live in some sort of assisted living place, where he would have me sitting listening to him all day long, and I would be there to scrub his back any time he wanted.

I know Honey doesn't understand, but I feel like anytime I show any weakness I am under attack. He yells because I won't run into the ER and get some answers right this second. Oh and while I'm out, run by the sonic and get his (diabetic self) a large Reeces  blast, before he looses it.

Sorry I just got on here to gripe. I think I just need to unload  a bit or I will end up crying. My eyes are blood shot enough. mini-graphics-rain-671032

Oh my goodness, Diamond! I'm so sorry that you have been going through all this! I hope you and your doctors are able to get everything figured out quickly so you can start getting some relief from all of the pain.

Thank you so much for the information. I haven't watch the film yet HL4L. I'll do that on a day. Today is just to nice and I have to get lots done before the next storm due in a few days. One thing the article brought up was that Lyme might be transmitted via an STD. I know mine would have been from a tick. I found the little blood sucker, and mashed it. It did contain a lot of blood. Also it wasn't one of the ticks that look like tree bark, or American dog tics. It was a little greenish gray guy, with a dark head and legs. Nope I guarantee that it was a tick, and Honey is absolutely safe. Well unless he makes me so mad, I bite him. 

Tomorrow will be my last day of Doxycycline. I will have taken it for 30 days. I don't think there is much more that they can do than that.

I didn't hear anything back from the blood tests from the Rheumatologist ran. I tried calling, but they are out of the office until Monday. I guess I will just call them back them.

I feel pretty good right now, except for the side effects from the prednisone. I am getting as much done as I can, just incase the pain comes back.

I think I am lucky, because Dr. didn't even hesitate, and put me on Doxy right away. He told me he nearly lost a brother who was sick for a couple of years before they figured out it was Lyme. When I saw the rheumatologist, he old me there was no Lyme in Kansas. A couple days I read a CDC report that said that Lyme was nearly every state. What it didn't show, was a spot on the creek behind my house, and I know of a person who tested positive, because he contracted it there.

I don't understand why there seems to be so much of a cover up, but I have seen this with the CDC before. I knew of a positive West Nile case that wasn't on a report, because it was blood, that tested positive, rather than spinal fluid. It was so frustrating, because it involved a young boy, who became paralyzed, and nearly lost his life. Still the CDC reported that there was no west nile in Barton county that year. His parents didn't want to put him through a spinal tap.

The report link on Lyme disease also said there could be a possibility of transmission, from a pet, either by a tick crawling off them and onto you, or I think it even mentioned an animal bite or scratch. Well I'm not going to give up any one of my babies, because they might bring in a bug or two. I really think I am far more guilty of carrying in insects into the house than they are.

I did read the part about mosquitos also being a carrier too, but what makes me the most concerned is the denial, or misdiagnosis, and the inaccuracy of the testing.

I talked to a nurse at work today. She had bells palsy, at the age of 17. I remember when she came in with half her face drooping, and so frightened. I asked her if it could have been Lyme. She said her Lyme test was negative, but she was treated for Lyme, as a precaution, and hasn't had a problem sense. Tat way 5 years ago.

I totally understand that the medical field has gotten into so much trouble with it's overuse, and misuse of antibiotics, but why are they ignoring Lyme disease. It doesn't seem that hard to treat. Doxycycine  is generic and inexpensive. If this stuff can be carried by a mosquito, is it so unbelievable it can be causing illness, right here in central Kansas?

I suppose I just want answers. I'm angry, and hurt. I want to play with my dream farm, but I have had one calamity after another since I bought this place. I worked, some times two jobs, for 25 years, while Honey went to the lake, played golf and had his street rods, because we both knew the day would come when he couldn't enjoy those things anymore. I just didn't bargain for when it became time for me to realize my dreams, I would be cut short, because of my own stupid health.

It is becoming more and more clear to me that I can't do this all by myself. There is still other peoples junk to be hauled off, grass to plant, fence to put up, an old barn to be torn down, and a nice barn to be built. I can't afford to hire someone to build those things for me, and I can't do it myself anymore. Shoot I did hire a builder to build a front deck with a ramp for Honey, and all he did was cuss at God, and sit on the pile of wood and smoke. I picked up cigarette butts out of the yard for weeks, while my son-in-law and I built the front deck. All for Honey, who only leaves the house one day a week, when I take him to the nursing home, to visit his Dad.

We have DISH for him, and Netflix and Stars movie channels, so he has something to do with his time, and tonight he is upset because I haven't added HBO yet, to our television line up.

I spent the day splitting wood, getting a bale for the horses, and getting extra feed, because we are supposed to get significant  in a few days. I couldn't really care less if he has HBO.

Sorry I get angry sometimes and mouth off. I shouldn't, but sometimes it's hard to just sit back and take it. I just might not order his stupid HBO until it starts to , and I have nothing else to do!!!!